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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
Buffalo, NY

I’m feeling well just think I have lost my sense of taste. It may have been before I actually was diagnosed and before I started Vyndamax.

June 29, 2024
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Reactions
A MyAmyloidosisTeam Member

Fortunately I haven’t lost my sense of taste or smell. I’ve been on chemo since 2022.

July 1, 2024
A MyAmyloidosisTeam Member

Have not lost any taste

July 13, 2024
A MyAmyloidosisTeam Member

I haven’t lost it but everything tastes crappy especially chocolate!

June 29, 2024
A MyAmyloidosisTeam Member

I definitely lost my sense of taste well into my Chemo treatments. Once past Chemo my sense of taste gradually came back, although still a year later, not totally. Prior to Amy I used to nibble on chocolate peanut clusters but now and then I will try one and they just do not taste as good as they used. to.
And Mike, on another topic what did you decide regarding an e-trike? I am now riding mine almost every day. vern

June 29, 2024
MyAmyloidosisTeam

Yes, loss of sense of taste can be a symptom of amyloidosis. This can occur due to the involvement of the nervous system, which may affect sensory functions. If you or someone you know is experiencing this symptom, it is important to discuss it with a healthcare provider for proper management and support.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

Eating a Healthy Diet With Amyloidosis | MyAmyloidosisTeam
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June 29, 2024

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