Hi I Was Diagnosed With Hereditary Amyloidosis Attr T60A Variant In June 2023 Receiving Vutrisiran Since October 2023 Also Have Neuropathy | MyAmyloidosisT

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Hi I Was Diagnosed With Hereditary Amyloidosis Attr T60A Variant In June 2023 Receiving Vutrisiran Since October 2023 Also Have Neuropathy

A MyAmyloidosisTeam Member asked a question πŸ’­
posted July 6
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A MyAmyloidosisTeam Member

What is my prognosis

posted July 6
A MyAmyloidosisTeam Member

Try, I know it’s hard, not to focus on your prognosis. Take it one day at a time.

posted July 7
A MyAmyloidosisTeam Member

I'm sorry to hear about your diagnosis. Here are some key points about hereditary ATTR amyloidosis and your treatment:

- T60A Variant: This mutation is often seen in people of Irish descent and is associated with a later onset of symptoms, typically between ages 45 and 78, most commonly after age 60.

- Vutrisiran (Amvu... read more

I'm sorry to hear about your diagnosis. Here are some key points about hereditary ATTR amyloidosis and your treatment:

- T60A Variant: This mutation is often seen in people of Irish descent and is associated with a later onset of symptoms, typically between ages 45 and 78, most commonly after age 60.

- Vutrisiran (Amvuttra): This medication is one of the FDA-approved drugs that blocks the TTR gene from making amyloid protein, specifically for those with nerve problems.

- Neuropathy: This is a common symptom of hATTR amyloidosis, where the misfolded amyloid proteins affect the nerves.

If you have any specific questions or need more information, feel free to ask!

 This AI-generated response comes from MyAmyloidosisTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

What Is hATTR Amyloidosis? 6 Things To Know | MyAmyloidosisTeam
Hereditary ATTR Amyloidosis Age of Onset: What You Should Know | MyAmyloidosisTeam
posted July 6

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