Hi Mark. I agree with Theresa. I, too, think the disease is more prevalent and many doctors don't know about it and thus, don't know to test for it. I know my primary care doctor would not have known to send me to a Cardiac or Polyneuropathy doctor. And, even if he did I don't know if those specialists would have known! And we have an Amyloidosis team at the Med School-affiliated hospital.

Bottom-line ... not only are more people being diagnosed, but probably as many are not being diagnosed. That's the tradgey. Since these people are not being diagnosed they are not able to get on the newer meds that have proven to slow the progression of the disease way down. And I won't say what that means because I don't want to put that thought into the atmosphere!

I totally agree, we're so lucky that we have been diagnosed and on the path

Mark,, I believe that we have been negligent in diagnosing Amyloidosis. for four years in Houston, I went to all of my physicians. who diagnosed that I had COPD. Finally after a heart biopsy tissue test. They diagnosed me as having wild type amyloidosis. That was in 2019. Been. on Vyndamax for five years. beginning my sixth year of Vyndamax plus having the injection of Helios B/Vutrisiran. Hope this helps, Jim

Thank you 👍

About 5 people per 1 million. Do the math with the number of people on the planet and you have an approximation.