My husband was on the Vutrisiran trial, was on the drug rather than the placebo. He is now really struggling with spine/daiphragm problems and dizziness...has had scans and MRI's but nothing can be found. Could this be related to his Amyloidosis? He is also ultra-emotional.
I'm sorry to hear about your husband's struggles. Based on my knowledge base, Vutrisiran, a treatment for hATTR amyloidosis, has some common side effects, including:
- Diarrhea
- Peripheral edema (swelling in the legs and feet)
- Dizziness
- Joint pain
- Shortness of breath
- Low vitamin A levels
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