The above information is very helpful as my insurance will no longer pay for the VYNDAMAX which is over $22,400.00. I cannot afford to pay that price. So I have called my 2 heart doctors to see what is available for me at an affordable price.

I have been taking vyndamax for over 3 yrs. I believe its the most effective drug for wild type amyloidosis out there. I also take Jardience , lasix as well and Ive been doing good. Getting in some walking,biking and weight training helps.

You could apply for the pfizer vyndalink program and try and get help with the cost.

Yes ,Janet2 from Enhland ..i have cardiac AMYLOIDOSIS ATTR wild type was told this in Jan of 2024. And I have back spine lumbar hip issues and gastro issues amd carpul tunnel.

There is a drug called vyndaquel I think it is 4 pills a day.