Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What are the newest drugs to help with wild type Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Greenwich, CT
January 4, 2025
 · 
Reactions
A MyAmyloidosisTeam Member

I tested positive for Amyloidosis in December. Medical team thinks it is Wild type. Genetic testing is in process for hereditary, Have been taking Attruby (acoramidis) for three weeks. It was approved by the FDA in November 2024. It is very expensive.
My medical team applied me for medicine assistance to get it. it seems to be working. Pain level is low and few nerve shocks in body, Numbness in lower legs and feet is less. I take 2 356 mgs in the morning and 2 356 mgs at night.

February 2, 2025
A MyAmyloidosisTeam Member

I have been on VYNDAMAX 61 mg. Since March of 2024. I feel no different now then when I started packing the pill. This site is very helpful ..I read every can on this disease.

January 5, 2025
A MyAmyloidosisTeam Member

Also Inpefa

January 4, 2025
MyAmyloidosisTeam

The newest drugs approved for wild-type amyloidosis are Vyndaqel (tafamidis meglumine) and Vyndamax (tafamidis). These medications prevent the TTR protein from forming amyloid fibrils, helping to slow disease progression and improve survival rates. Additionally, researchers are studying gene-silencing drugs, initially Show Full Answer

The newest drugs approved for wild-type amyloidosis are Vyndaqel (tafamidis meglumine) and Vyndamax (tafamidis). These medications prevent the TTR protein from forming amyloid fibrils, helping to slow disease progression and improve survival rates. Additionally, researchers are studying gene-silencing drugs, initially approved for hereditary ATTR amyloidosis, to see if they can benefit wild-type amyloidosis.

January 4, 2025

Related Questions

View All

Any information on depleter drug trials for amyloidosis wild type

A MyAmyloidosisTeam Member asked a question 💭
June 28

Are blood clots common with Wild type ATTR Amyloidosis?

A MyAmyloidosisTeam Member asked a question 💭
Gap, PA
July 29

Wild-Type Amyloidosis (Senile Amyloidosis): Symptoms, Prognosis, and More
What’s the Difference Between hATTR and Wild-Type ATTR?
Can the Barostim Device Help Amyloidosis? What We Know