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A MyAmyloidosisTeam Member asked a question 💭
Sydney, AU
February 18, 2025
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A MyAmyloidosisTeam Member

The following announcement came today (3/29/25) via ARC (Amyloidosis Research Consortium):
"The U.S. Food and Drug Administration has approved Alnylam’s AMVUTTRA™ (vutrisiran) for the treatment of patients with transthyretin amyloid cardiomyopathy (ATTR-CM).

The FDA’s approval of AMVUTTRA provides a new type of treatment for ATTR-CM. The treatment has already delivered beneficial results for those living with ATTR-PN (polyneuropathy)."

I encourage folks to sign up with ARC ( (Email address can only be seen by the question and answer creators)) to receive timely announcements about new drug approval, such as the above. They also run a monthly webinar, the next being in April. The March 19th one is recorded and available to watch. This one was run by a psychologist and dwelt on mood and emotions related to amyloidosis diagnosis.

I plan to contribute some of my RMD (required minimum distribution) to ARC. vern

March 26, 2025 (edited)
A MyAmyloidosisTeam Member

Thank you, would a person with wild cardiac amyloidosis qualify for that drug, he has neuropathy but don’t know what kind. Thanks

March 26, 2025

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