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April 6, 2025
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A MyAmyloidosisTeam Member

Shirley I’ve recently started having leg and calf pain but only in my left leg. My chiropractor was clearing it up but it seemed to get worse after I had a stress test which had me running on a treadmill. Now I am having some balance issues which have me very concerned. Going to try some physical therapy , hopefully that will solve the problems. As you stated very painful to walk any distance. Luckily I am able to ride my recumbent bike in the basement and with better weather my outdoor rides will resume.

April 6, 2025
A MyAmyloidosisTeam Member

Yeah Shirley unfortunately, I have HTTR-CM, hereditary peripheral neuropathy. I wear Tommie Copper compression socks most days, other times knee braces, couple Tommie Copper footies for years. Got car accidents, rear-ended 25 days apart January/February 2022, so that pain exacerbates or makes worse Amyloid pains, I could go on but I won't. I get inner thigh, hips and back pain, but obviously the back is combination of the accidents, so in a nutshell I'm ILL AND INJURED.

Be well and everyone stay BLESSED, do what's Right, what we do think is Right. Exercise and try to keep MOVING as much as possible.

Regards
GStrong

April 9, 2025
A MyAmyloidosisTeam Member

Hi Shirley. I get them in my calves for short periods when I stretch my legs they stop

April 6, 2025
MyAmyloidosisTeam

Yes, leg pain is a common symptom experienced by people with amyloidosis. This pain often occurs due to nerve damage (peripheral neuropathy) caused by the buildup of amyloid proteins. The pain can feel like burning, tingling, or numbness, and typically starts in the feet and legs, following a "stocking-and-glove" pattern.

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Yes, leg pain is a common symptom experienced by people with amyloidosis. This pain often occurs due to nerve damage (peripheral neuropathy) caused by the buildup of amyloid proteins. The pain can feel like burning, tingling, or numbness, and typically starts in the feet and legs, following a "stocking-and-glove" pattern.

Walking short distances and experiencing pain could be related to how amyloidosis affects your nerves and blood circulation. Some people lose sensitivity to temperature or become extremely sensitive to pain as the condition progresses. It's important to discuss these symptoms with your healthcare team, as they may need to adjust your treatment plan. The leg pain could also be related to circulation issues if amyloidosis is affecting your heart function, which can make it harder for blood to pump effectively throughout your body.

April 6, 2025

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