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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
Denver, CO
April 12, 2025
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A MyAmyloidosisTeam Member

I have been seeing Doc at Henry Ford Hospital She treats Amy And does heart transplants Knows this disease And another doc at Karmanoes In Detroit Amy spec. Joe

April 14, 2025
A MyAmyloidosisTeam Member

Thank you, do you have attr-wt? How long age was your diagnosis? What type of doctor\specialist prescribed the Diflusinal for you?

April 14, 2025
A MyAmyloidosisTeam Member

Diflusinal may stop or slow the misfolding.Its going on 3 years My last test was a few weeks ago Biomarkers still the same

April 14, 2025
A MyAmyloidosisTeam Member

Diflusinal for pain or to actually halt progression?

April 12, 2025
A MyAmyloidosisTeam Member

Christie.I have wild attr I have been taking DIFLUSINAL for about 2 years .It is not in my heart yet this med works like tafamitas,I have had all the tests ,JOE

April 12, 2025

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