Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
Charleston, SC

My husband has been having rapid heartbeat when lying down. Four different cardiologists have been told, monitors have been worn, lots of tests, but no help and no concern. Very intermittent so hard to diagnose. Trying to find the cause but no luck.

May 9, 2025
 · 
Reactions
A MyAmyloidosisTeam Member

Try sleeping on your right side or in a recliner chair sitting up slightly. I’ve been on Vyndamax 61 for years, with a pacemaker and i rarely have Afib and don’t notice it. The pacemaker records it. The clinic gets a report automatically by wifi if serious or quarterly to see whats going on.

May 10, 2025
A MyAmyloidosisTeam Member

Thanks. It's not afib. He has a pacemaker. It's more like PVCs or tachycardia. The doctors are not concerned but he cannot sleep. It will stop if he sits up, but who wants to spend the night sitting up? Turning to the side does not help.

May 10, 2025
MyAmyloidosisTeam

Arrhythmias (irregular heartbeats) are common in people with cardiac amyloidosis. The most frequent type is atrial fibrillation (AFib), which can cause rapid heartbeat sensations. These rhythm changes can occur because amyloid deposits may disrupt the heart's electrical system, and when blood backs up, it increases pressure Show Full Answer

Arrhythmias (irregular heartbeats) are common in people with cardiac amyloidosis. The most frequent type is atrial fibrillation (AFib), which can cause rapid heartbeat sensations. These rhythm changes can occur because amyloid deposits may disrupt the heart's electrical system, and when blood backs up, it increases pressure in the heart. While it's good that your husband has undergone monitoring and testing, intermittent symptoms can be challenging to catch during testing periods. Since this is affecting his quality of life, particularly at night, it's worth continuing to document when these episodes occur and what might trigger them. Consider keeping a detailed log of when the rapid heartbeat happens, including time of day, position, and any other symptoms, to help doctors better understand the pattern.

May 9, 2025

Related Questions

View All
A MyAmyloidosisTeam Member asked a question 💭

A MyAmyloidosisTeam Member asked a question 💭
LITHCHFIELD PARK, az

A MyAmyloidosisTeam Member asked a question 💭
Venice, FL

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In