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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 7, 2025
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A MyAmyloidosisTeam Member

Has he followed up and had tests to determine if his labs show improvement?

August 29
MyAmyloidosisTeam

Dizziness in ATTR-CM wild type can be caused by several factors related to the condition. One common cause is orthostatic hypotension, which causes a sudden drop in blood pressure when standing up, leading to dizziness and lightheadedness. This happens because amyloidosis can affect the autonomic nerves that control blood Show Full Answer

Dizziness in ATTR-CM wild type can be caused by several factors related to the condition. One common cause is orthostatic hypotension, which causes a sudden drop in blood pressure when standing up, leading to dizziness and lightheadedness. This happens because amyloidosis can affect the autonomic nerves that control blood pressure regulation.

Another potential cause could be atrial fibrillation (AFib), which occurs in 40-60% of people with ATTR-CM and can cause symptoms including:
• Dizziness
• Feeling faint
• Heart palpitations
• Fatigue
• Shortness of breath Since your husband isn't feeling better after a year on Vyndamax, it's important to discuss these symptoms with his healthcare provider. They may need to:
• Evaluate if his current treatment plan needs adjustment
• Check for underlying heart rhythm issues
• Assess his blood pressure, particularly when changing positions
• Consider if additional treatments are needed to manage specific symptoms

Early action and proper symptom management can make a significant difference in quality of life with ATTR-CM.

September 7, 2025

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Hawthorne, NJ