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A MyAmyloidosisTeam Member asked a question 💭
Eugene, OR

My husband was recently diagnosed after experiencing heart failure and fluid build up. No specifics yet. Still waiting to meet with specialists. He also experienced extreme fatigue

September 10, 2025
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A MyAmyloidosisTeam Member

Yes it's part of the deal. Congestive Heart Failure diagnosis Nov 2015, official diagnosis of HTTR-CM Aug '21. Very hard dependent down so I'm pretty sure I've had it at least 7-8 years. Couple car accidents 25 days apart didn't help in Jan/Feb '22, rear-ended, neck surgery August 23rd,'23.

Unfortunately is also part of the disease 😢

Stay positive and strong Nicole and family.

Regards
GStrong

September 10, 2025
MyAmyloidosisTeam

Yes, joint and muscle pain are common symptoms in amyloidosis. Amyloid proteins can build up in joints throughout the body, sometimes causing swelling and discomfort. This can affect multiple joints or focus on specific areas. Some people even develop a distinctive "shoulder pad" symptom where amyloid deposits make Show Full Answer

Yes, joint and muscle pain are common symptoms in amyloidosis. Amyloid proteins can build up in joints throughout the body, sometimes causing swelling and discomfort. This can affect multiple joints or focus on specific areas. Some people even develop a distinctive "shoulder pad" symptom where amyloid deposits make shoulders appear larger. The heart failure, fluid buildup (edema), and fatigue your husband is experiencing are also typical symptoms. When amyloid builds up in heart tissue, it can make the heart muscle stiff and lead to:

• Shortness of breath
• Swelling in legs, feet, and ankles
• Extreme fatigue that doesn't improve with rest
• Decreased appetite
• Confusion or difficulty thinking
• Irregular heartbeat

It's good that he'll be seeing specialists soon, as they can provide proper treatment targeted to his specific type of amyloidosis.

September 10, 2025

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Saint Louis, MO