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A MyAmyloidosisTeam Member asked a question 💭
Orange nsw Australia

Does this get any easier and less Scarry
How long b4 everyone's numbers come down or it looked like it was working ??????????

October 15, 2025
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A MyAmyloidosisTeam Member

Hi Karen, what chemo are you having. I had Bortezamib mixed with dexamethosone i completed two rounds about and my light chains dropped significantly, unfortunately it also gives me neuropathy in my hands and feet so they have taken me off it now.
I have another I injection each week called daratumumab, which
Seems to have no major effect.
My light chains are right down so now we are hoping to work on the amyloid which I have been told will take a long time.
It has not been easy, my blood pressure dropped is very low, so that is being treated, and I feel very seedy and shaky. I am improving and my bad days are getting less. I have a great team at nepean who are on the ball.
Hang in there

October 15, 2025
A MyAmyloidosisTeam Member

Within 6 months I was in complete hematological response

October 15, 2025
MyAmyloidosisTeam

The journey through chemotherapy treatment can feel overwhelming, but many people find that understanding what to expect helps reduce anxiety over time. The first 6 months of treatment are especially important for getting the condition under control.

While everyone responds differently to treatment, doctors can monitor your Show Full Answer

The journey through chemotherapy treatment can feel overwhelming, but many people find that understanding what to expect helps reduce anxiety over time. The first 6 months of treatment are especially important for getting the condition under control.

While everyone responds differently to treatment, doctors can monitor your progress through regular follow-up visits to check how well the therapy is working and make any needed adjustments to your treatment plan. The good news is that when AL amyloidosis responds well to initial treatments within those first 6 months after diagnosis, the outlook is generally positive. Your healthcare team will work closely with you to:

• Monitor your progress
• Track your numbers
• Adjust treatments as needed
• Address any side effects
• Ensure the treatment plan aligns with your needs and goals

October 15, 2025

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A MyAmyloidosisTeam Member asked a question 💭
Orange nsw Australia

A MyAmyloidosisTeam Member asked a question 💭
Orange nsw Australia