Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

We have experience with pace makers, as his mother had one.

November 13, 2025
 · 
Reactions
A MyAmyloidosisTeam Member

I have one. The surgery wasn’t a big deal and neither was recovery. He’ll do great!

November 14, 2025
A MyAmyloidosisTeam Member

I also have a pacemaker. It was placed in 2025, 6 years after diagnosis. Mine is a dual lead, which can pace the atria and the ventricals. No issues with the procedure and easy recovery. I actually forget that it is there. Pacemakers today are small, reliable and not intrusive. Most people do not know it's there unless I tell them. I do occasionally set off theft alarms when entering or exiting a store ha!

October 1
A MyAmyloidosisTeam Member

They diagnosed my amyloidosis a few months after I got my pacemaker...2 years later they put in the defibrillator...the surgery and recovery were fairly easy and I felt so much better after. Also started Entresto which helped immensely. I feel that I would have died without the pacemaker.

December 6, 2025
A MyAmyloidosisTeam Member

I have been told that I will be getting one before the first of the year

November 16, 2025
A MyAmyloidosisTeam Member

Hi. Sorry i cannot have a pacemaker fitted I've been told uts the wrong
side of my heart. Where I live 50 % of the people have them fitted &are
very well. Every best wish for you both.Dx

November 13, 2025

Related Questions

View All
A MyAmyloidosisTeam Member asked a question 💭
Ormond Beach, FL

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY