I am on Amvuttra 2 shots so far
Legs and feet swell stomach bloated
Very tired. What is next
November 23, 2025
What form of amyloidosis do you have if you're taking Attruby?
It's great to hear you're doing well on Attruby! Since you're taking this medication, you have ATTR-CM (transthyretin amyloid cardiomyopathy). Attruby (acoramidis) is specifically approved to treat this form of amyloidosis, which affects the heart.
ATTR-CM can Show Full Answer
What form of amyloidosis do you have if you're taking Attruby?
It's great to hear you're doing well on Attruby! Since you're taking this medication, you have ATTR-CM (transthyretin amyloid cardiomyopathy). Attruby (acoramidis) is specifically approved to treat this form of amyloidosis, which affects the heart.
ATTR-CM can be either:
- Wild-type ATTR (not inherited)
- Hereditary ATTR or hATTR (passed down through families due to a gene mutation)
Your doctor should clarify which type you have, as this matters for your family and long-term care planning. If you have the hereditary form, your family members might benefit from genetic testing.
It's completely reasonable to ask your doctor directly: "Which type of ATTR-CM do I have - wild-type or hereditary?" You might also ask if genetic testing was done to determine this.
Many MyAmyloidosisTeam members have found it helpful to keep a list of questions for their appointments, especially about their specific diagnosis and what it means for their care.
November 23, 2025
Join
Your Privacy Choices
