I get it. It is a trade off. you can die quickly and get it over with, or you can choose to live and have a life occupied with dealing with this disease. Compartmentalize. Focus on what is really important, make peace. Prioritize. Love light. It beats darkness.
December 22, 2025
End Game
It’s all about HOPE— TIME —-PAIN
IM STILL UN THE
NEVER / NEVER / NEVER
GIVE UP.
Phase in my Journey
Good Things will happen
You are not alone.
December 9, 2025
I agree and so does my family. Thanks for sharing and Merry Christmas to you and yours
December 22, 2025
Please don’t stop treatment. Try to remain positive. With treatment some people are alive 10 to 20 years later. With no treatment it’s not a good senario. You’re way too young. I know the chemo gets you down but after a while you’ll go on maintenance and it will be better. I would rather have a fighting chance especially when new drugs and treatments are in clinical trials.
December 9, 2025 (edited)
What happens to life expectancy with systemic AL amyloidosis if treatment is stopped?
Stopping treatment for systemic AL amyloidosis can significantly impact life expectancy. Without treatment, the disease progresses more rapidly as amyloid proteins continue to build up in organs throughout your body.
The heart is often Show Full Answer
What happens to life expectancy with systemic AL amyloidosis if treatment is stopped?
Stopping treatment for systemic AL amyloidosis can significantly impact life expectancy. Without treatment, the disease progresses more rapidly as amyloid proteins continue to build up in organs throughout your body.
The heart is often the most critical factor. When cardiac involvement worsens without treatment, survival times can be much shorter. About 30 percent of people with AL amyloidosis live only a few months when they don't receive treatment early enough or when organs are already severely damaged.
Treatment is essential because it can:
- Slow or stop the production of abnormal light-chain proteins
- Reduce amyloid deposits in organs
- Help achieve remission in some cases
- Significantly extend survival time
With effective treatment started within the first six months after diagnosis, people can live for many years. Current treatments have improved survival rates dramatically - about 1 in 5 people are alive 10 years after diagnosis with proper treatment.
If you're considering stopping treatment or have concerns about your current therapy, it's crucial to discuss this with your healthcare team. They can help you understand the specific risks based on your stage of disease and organ involvement, and may be able to adjust your treatment plan if you're experiencing difficulties.
AI-generated responses are not a substitute for medical advice. These services are not intended to
diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.
Overview of Amyloidosis
Can Amyloidosis Be Cured?
December 9, 2025
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