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January 14
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MyAmyloidosisTeam

How can constant phlegm buildup be managed while on treatment for wild-type amyloidosis?

Wild-type amyloidosis primarily affects the heart, and the constant phlegm you're experiencing could be related to fluid buildup from heart involvement. When the heart becomes stiff from amyloid deposits, it can cause fluid to back up Show Full Answer

How can constant phlegm buildup be managed while on treatment for wild-type amyloidosis?

Wild-type amyloidosis primarily affects the heart, and the constant phlegm you're experiencing could be related to fluid buildup from heart involvement. When the heart becomes stiff from amyloid deposits, it can cause fluid to back up into the lungs, leading to congestion and phlegm.

Your current medications include:
- Vyndaqel (tafamidis meglumine) - stabilizes the TTR protein to slow amyloid buildup
- Furosemide - a diuretic that helps remove excess fluid
- Forxiga - helps manage fluid and supports heart function

The phlegm buildup might indicate that your fluid management needs adjustment. Your healthcare team may need to:
- Adjust your furosemide dose
- Review your sodium intake (keeping salt low helps reduce fluid retention)
- Monitor for signs of worsening heart function

It's important to contact your cardiologist about this symptom, especially since you were recently diagnosed. Persistent phlegm or congestion can signal that fluid is accumulating despite your current diuretic dose, and early intervention can help prevent complications.

In the meantime, sleeping with your head elevated and monitoring for increased shortness of breath or swelling can help you track changes.

January 14

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