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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question πŸ’­
Detroit, MI
May 9
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A MyAmyloidosisTeam Member

Chair yoga has helped me

May 9
A MyAmyloidosisTeam Member

I have a walker but the use of it is not frequent. My Doctor, whom I respect as a MD and a DO suggested PT to get balance back. I know of a PT person whom I have used frequently to get a knee replacement along with a few more times of encountering her (she is fantastic) as you can tell. I had a problem with my left hip and she gave me a few exercises to perform. Problem "cured" even though I resisted initially. Just have to spend a few minutes with the stretching every day. I anticipate the same results this time because she can perform with little input from me. Unlike many organizations who give you instructions, period. She gets me to do the exercises so I know what and when to do the exercises.

May 13
MyAmyloidosisTeam

Balance issues are a real challenge with amyloidosis, and you're definitely not alone in dealing with them. Amyloid protein buildup can damage nerves, affect blood pressure regulation, and cause fatigue β€” all of which can make staying steady on your feet harder.

Here are six practical tips that may help:

1. Address nerve Show Full Answer

Balance issues are a real challenge with amyloidosis, and you're definitely not alone in dealing with them. Amyloid protein buildup can damage nerves, affect blood pressure regulation, and cause fatigue β€” all of which can make staying steady on your feet harder.

Here are six practical tips that may help:

1. Address nerve damage β€” Talk to your doctor about treatments for amyloid neuropathy, which can directly impact coordination and balance.
2. Manage low blood pressure β€” Rise slowly when standing, stay well hydrated, eat smaller and more frequent meals, and ask your doctor about compression stockings.
3. Use supportive devices β€” Canes, walkers, or braces can boost stability and confidence. As one MyAmyloidosisTeam member put it, "Get a walker β€” it helps a lot with balance."
4. Try physical therapy β€” A vestibular physical therapist specializes in balance and can guide you through exercises like standing on one leg, heel-to-toe walking, and gentle yoga. One MyAmyloidosisTeam member shared that vestibular physical therapy really helped improve their balance.
5. Make your home safer β€” Remove loose rugs, add grab bars in the bathroom, keep walkways clear, and improve lighting in dim areas.
6. Seek support β€” Connecting with others who understand what you're going through can ease the emotional weight of living with balance challenges.

Always discuss any new strategies with your doctor before trying them, so they can be tailored safely to your situation.

May 9

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