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A MyAmyloidosisTeam Member asked a question πŸ’­
May 11
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A MyAmyloidosisTeam Member

Walking and gabapentin

May 12
MyAmyloidosisTeam

Numb feet are a really common frustration for people living with amyloidosis, and it's often linked to amyloid neuropathy β€” when amyloid deposits affect the peripheral nerves. The good news is there are several things that may help.

Here are some approaches worth exploring with your doctor:

- Medications β€” There are Show Full Answer

Numb feet are a really common frustration for people living with amyloidosis, and it's often linked to amyloid neuropathy β€” when amyloid deposits affect the peripheral nerves. The good news is there are several things that may help.

Here are some approaches worth exploring with your doctor:

- Medications β€” There are treatments that can help manage neuropathic symptoms, including numbness
- Disease-modifying therapies β€” For ATTR amyloidosis, certain treatments can slow nerve damage progression, which may help prevent symptoms from worsening
- Physical therapy β€” A physical therapist, especially a vestibular specialist, can guide exercises to improve coordination and strength
- Foot care β€” Since numbness increases the risk of unnoticed cuts or blisters, careful daily foot checks are really important
- Supportive devices β€” Canes or walkers can help with stability if numbness is affecting your balance

One MyAmyloidosisTeam member shared, *"Feeling good except numbness in feet"* β€” a reminder that managing other symptoms well can still leave quality of life in a better place overall.

It's worth having an open conversation with your doctor about your current treatment plan, as adjustments may help address nerve-related symptoms more effectively.

May 11

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