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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question πŸ’­
Milton Keynes, UK
June 25
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A MyAmyloidosisTeam Member

Already on it

June 25
MyAmyloidosisTeam

It sounds like you're asking about Wainua (eplontersen) β€” a relatively new medication approved to treat polyneuropathy caused by hereditary ATTR (hATTR) amyloidosis, also known as ATTR-PN.

Here's a quick overview of what's known about it:

- It's given as a once-monthly injection, which many people find convenient
- It Show Full Answer

It sounds like you're asking about Wainua (eplontersen) β€” a relatively new medication approved to treat polyneuropathy caused by hereditary ATTR (hATTR) amyloidosis, also known as ATTR-PN.

Here's a quick overview of what's known about it:

- It's given as a once-monthly injection, which many people find convenient
- It comes in a prefilled syringe or autoinjector, making home administration simpler
- No extra steps like drawing up medication are needed

Some things worth knowing before starting it:

- It takes time to feel confident with self-injections, but healthcare providers can walk you through the process
- Setting a monthly reminder helps keep levels steady in your body
- As with any medication, there are potential side effects to discuss with your doctor While there aren't specific member reviews to share here right now, many MyAmyloidosisTeam members do discuss their experiences with treatments like Wainua in the community feed and Q&A sections β€” worth browsing if you haven't already!

As always, your specialist is the best person to help decide if Wainua is the right fit for your specific situation.

June 25
A MyAmyloidosisTeam Member

I just have been prescribed Wainua and going to start treatment on September 18' 2026 has anyone start on this medication and are you having issues with this treatment

1 day ago

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