Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

He said he usually comes out like pieces of coconut when you remove it so the AL has corrupted that area. I had a fusion and I’m hopefully that it takes and that the AL does not interfere with the healing process.

I am also on an experimental trial which I’m not sure if I got the real drug or the placebo I’m one you’re into the trial and feeling very good. It is a depleter not a silencer or stabilizer like Vyndamax which I have been on for a year and a half.

Supposedly this new drug, the study… read more

December 29, 2025
 · 
Be the first to react
MyAmyloidosisTeam

Has anyone with amyloidosis had a successful spinal fusion?

It's great that you're feeling good one year into your trial! While the search results don't include specific experiences from members who've had spinal fusions, amyloidosis can affect joints and may require various surgical procedures.

When amyloidosis affects Show Full Answer

Has anyone with amyloidosis had a successful spinal fusion?

It's great that you're feeling good one year into your trial! While the search results don't include specific experiences from members who've had spinal fusions, amyloidosis can affect joints and may require various surgical procedures.

When amyloidosis affects the joints, several surgical procedures may be necessary, including carpal tunnel surgery or total hip replacement. Your healthcare provider can discuss the pros and cons of these procedures with you.

The experimental depleter drug you mentioned sounds promising. Unlike stabilizers like Vyndamax that prevent further buildup, depleters work to actually remove existing amyloid deposits. This newer approach may help with healing after your fusion surgery.

Since you're concerned about whether the amyloidosis might interfere with healing, it's worth discussing this directly with both your surgeon and your amyloidosis specialist. They can monitor your recovery closely and adjust your care plan if needed.

You might consider posting your question on MyAmyloidosisTeam to connect with other members who may have had similar surgical experiences. Their firsthand insights could be really valuable as you recover.

December 29, 2025

Related Questions

View All
A MyAmyloidosisTeam Member asked a question 💭
Toms River, NJ