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A MyAmyloidosisTeam Member asked a question 💭
Alamogordo, NM

I am having this to the point it is unbearable. I just can't stand it at times. My doctor did give me pain medication that does help to an extent but even with the pain meds...

July 6
 · 
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What Is Polyneuropathy? Causes, Symptoms, and More Read Article...
MyAmyloidosisTeam

Living with polyneuropathy pain that breaks through even with medication sounds absolutely exhausting, and it's completely understandable to feel frustrated. The good news is there are more options beyond just oral pain medications worth exploring with your care team.

Here's a broader look at what's available for managing Show Full Answer

Living with polyneuropathy pain that breaks through even with medication sounds absolutely exhausting, and it's completely understandable to feel frustrated. The good news is there are more options beyond just oral pain medications worth exploring with your care team.

Here's a broader look at what's available for managing polyneuropathy:

Medical Options:
- Prescription creams or topical treatments to help reduce localized pain
- Adjusting or combining medications for better neuropathic pain control
- Disease-modifying therapies specifically for ATTR amyloidosis that can slow nerve damage progression

Physical Approaches:
- Physical therapy to help maintain muscle strength, mobility, and balance
- Exercise, which may help restore some nerve function and improve circulation

Complementary Therapies:
- Acupuncture
- Meditation and mindfulness practices It's really worth going back to your doctor and being very direct about how much the pain is breaking through. Phrases like "unbearable" and "I can't stand it" are important for them to hear — don't soften it.

Asking for a referral to a neurologist or an amyloidosis specialist center could also open up more targeted treatment options tailored specifically to your situation.

July 6

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