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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 13
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MyAmyloidosisTeam

That's a really important question, especially since monitoring the heart over time is a key part of managing wild-type ATTR amyloidosis — even when an echo looks clear right now.

General guidance suggests having repeat echocardiograms at least every 6 to 12 months. This helps track any changes in heart function over time Show Full Answer

That's a really important question, especially since monitoring the heart over time is a key part of managing wild-type ATTR amyloidosis — even when an echo looks clear right now.

General guidance suggests having repeat echocardiograms at least every 6 to 12 months. This helps track any changes in heart function over time, since wild-type ATTR primarily affects the heart. Here's why regular monitoring matters:

- An echo alone can't fully confirm or rule out cardiac amyloidosis in all cases
- Wild-type ATTR is a progressive condition, so changes can develop gradually
- Regular testing helps your care team catch any shifts early and adjust treatment if needed

It's worth having a direct conversation with your cardiologist about the right schedule for your specific situation. They may also recommend additional tests alongside the echo, such as a cardiac MRI or a PYP scan, depending on how things look over time.

Staying on top of regular check-ins gives the best chance of catching any changes before they become more serious.

July 13

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