Answer Summary
Members rallied around a fellow community member facing frightening symptoms from Amyloidosis, including dangerously low blood pressure,... Read more
Thank you Vern. Yes, I give the walking a go as soon as I feel enough air in my lungs to launch, into a walk on our trail. Once it would be a 2 to three miler, but now if I can get in 5000 steps I consider it a triumph for the day.
Richard
I am 86 and have had most of what you describe plus other serious symptoms and issues. I moved to an independent living facility with my wife due to these problems. I had difficulty walking across the room. Simply stated, I was highly deconditioned.
I now walk the halls early in each morning. The exercise has been my best medicine. My deconditioned body has improved to permitting me to walk one mile on my rollator in 30 minutes. The improvement was small each week, but real. Life is better despite my health issues and symptoms.
My recommendation is simple: fight your medical issues with exercise.
Tom
I love to see positive comments on exercise. Some of you may tire hearing me to stress exercise as well as: eat healthy, stay socially engaged, and keep a positive attitude. So keep those rollators rolling.
Richard ,I was on midodrine for perhaps a year to raise my blood pressure--prescribed of course by my amyloidosis cardiologist. It worked. Now my high ranges from 93 to 110 which is pretty much what my family's bp is.
vern
Well the dam donut possibly was not a good one but HEY! if it made you feel better .😀.. Now so many variations of this dam disease so you need the medical professionals provided you are with a team that knows Amyloid .. I can only speak for myself but just the no energy and going to sleep at the traffic lights if I stopped too long ? The time I went to sleep in a car wash was a real funny story .But the blood tests showed issues with the kidneys and eventually they did a biopsy . I guess I was lucky as like the heart the biopsies were a hit and miss . These days they have a dye that grabs the amyloid and the biopsy is not the holy grail . Now. I was lucky to get on a trial and you sound worse that I was so the trials are free and possibly like me a $6 mouth wash .. Sure better than the $28,000 ... monthly said my team ..
Early detection is the key .. All the best . and Richard that was 14 years ago so ...
without "leaning on many arms" it would be even worse for sure. Family, wife, doctors, staff, this great group, and of course the "everlasting arms" I don't really know how I'd be doing. Thank you William.