Hi, I’m Peter from the UK. Before my diagnosis of wild type ATTR I had problems with my hands going numb and night time pain. The hospital did test and confirmed I had Carpal Tunnel. I was on the waiting lists for an operation. In the meantime I started covering my whole hand each evening with Aloe Vera gel directly from the leaf. It would dry and only in the morning would I shower it off. By the time the appointment for the operation came, all symptoms had gone. The specialist was sure it would return but, now, years later and with the Amyloidosis diagnosis, it has never returned.
8 hours ago
Nighttime finger numbness is a common experience with amyloidosis, often linked to nerve involvement or carpal tunnel syndrome. The good news is there are several things that may help ease it. Here are some options worth discussing with your doctor:
- Wrist splints — Wearing these at night keeps your wrists in a neutral Show Full Answer
Nighttime finger numbness is a common experience with amyloidosis, often linked to nerve involvement or carpal tunnel syndrome. The good news is there are several things that may help ease it. Here are some options worth discussing with your doctor:
- Wrist splints — Wearing these at night keeps your wrists in a neutral position, which can reduce pressure on the median nerve and ease numbness
- Medications — Your doctor may prescribe something to help reduce swelling around the nerve
- Ice or rest — Reducing repetitive hand movements and applying ice can help with mild symptoms
- Surgery — If other treatments aren't working, carpal tunnel surgery can relieve nerve pressure more permanently One MyAmyloidosisTeam member shared that the tingling in their fingers is ongoing and that nothing seems to help for long — so it's worth knowing that managing this symptom can take some trial and error.
It's really important to talk to your healthcare provider about what's causing your specific numbness, so the right treatment approach can be found for you.
3 days ago