self kindness when struggling 6 minute guided meditation and amyloidosis | MyAmyloidosisTeam
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Top 10 Search Results for "self kindness when struggling 6 minute guided meditation"

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Any Suggestions For Caregiver Burn Out ? On Good Days I Do All I Can Plus,then On Bad Days When I Have To Restthe Guilt,the Blame Is Spoken
A MyAmyloidosisTeam Member asked a question 💭

Always verbal.Know he is tired and it's hard having to help with house hold when that was never part of ťhe deal before.

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A MyAmyloidosisTeam Member

Vern, kudos to you for being proactive and getting your end of life book assembled! It will allay many fears that your wife might have about the future when you pass away. You can also sit down, once… read more

What Vitamins, Nutrients Or Other Medications Are Contraindicated When Taking Vyndamax
A MyAmyloidosisTeam Member asked a question 💭

Age 89, Congestive heart failure, Osteoarthritis, and Glaucoma.
On Vyndamax 6 years

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A MyAmyloidosisTeam Member

That’s ridiculous!

https://www.drugs.com/search.php?searchterm=Vyn...

I found the above. As far as supplements you could google ex: tumeric interactions with vyndamax. Do each supplement separately.

… read more
Is Anyone Else Still Suffering Nausea And Diarrhea After STEM Cell Transplant? Mine Was Beginning Of Nov And Still Struggling With Effects
A MyAmyloidosisTeam Member asked a question 💭

AL Amyloidosis

A MyAmyloidosisTeam Member

That seems like a long time to still be effects of SCT. MD know?

Organ Specific Primary Amyloidosis Can You Explain This Condition?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

I am suffering from primary Amyloidisis affected on kideny filtration so creatine increased to @8

Bright Light Fuzziness
A MyAmyloidosisTeam Member asked a question 💭

I have non-hereditary cardiac AL. Just wondering Ive had a few episodes when I step outside into the bright light that everything gets blurry for about five minutes and then goes away.

Just wondering if that is related to my condition.

A MyAmyloidosisTeam Member

Check your bp when it happens.

Has Anyone Had A Nurse Inject Velcade And Dara At A 90 Degree Angle Without First Pinching The Skin?
A MyAmyloidosisTeam Member asked a question 💭

Nurse today injected straight into my abdomen on both sides, no pinching the fat first. My understanding is the injections are supposed to be subcutaneous and not go into the muscle directly (where the meds are absorbed faster). This is my sixth chemo, and by far the most painful. Within an hour I was nauseated, achey, chilled, and sick to my stomach. Just wondering if these new immediate side effects could be related to the way the meds were injected - specifically into the muscle. Anyone else… read more

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A MyAmyloidosisTeam Member

Thanks everyone for your responses. Chemo was Friday, and the severe pain in my abdomen continues. I will mention this to my oncologist and be sure to ask future nurses to pinch the skin and go slowly… read more

For Those Of You Who Have ATTRwt, I Am Curious What Additional Medications You Take To Treat Your Heart, Besides Amy Medication(s).
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

Jardiance 10mg. I also take 200 mg of nattokinase which I get from amazon and swanson.

Is There Anyone That Was Diagnosed With AL Amyloidosis And Has Relapsed?
A MyAmyloidosisTeam Member asked a question 💭

What treatment options are being offered to you/are you doing? The organ affected is my kidneys.

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A MyAmyloidosisTeam Member

Thankfully, my wife’s insurance has covered almost everything, they have done to me except the deductible on prescriptions. If we didn’t have the insurance, we would have lost our home, cars, boat and… read more

How Long Can AL Amyloidosis Be In The Body Before Symptoms Show Up?
A MyAmyloidosisTeam Member asked a question 💭

My husband was diagnosed with AL Amyloidosis in November 2023. I started seeing changes in him going back to about 2017-18
He’s always had yearly physicals that were normal, so I just thought maybe he’s getting older. Looking back I’m wondering if it’s was the beginning of what is now an advanced stage of AL Amyloidosis. Any thoughts are greatly appreciated!

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Organ Damage and AL Amyloidosis Read Article...
A MyAmyloidosisTeam Member

I believe we carry the disease lo g before it is diagnosed. The way mist diseases go, they lie recessive for years and by the time they show up they begin to start giving us trouble. I was having… read more

Question About Chemo For Al
A MyAmyloidosisTeam Member asked a question 💭

My husband has his 1st chemo next week. He would like to know how it is administered & how long it takes. Do you have to stay for a period of time?

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A MyAmyloidosisTeam Member

Thank you Jim9, I will let you know how he does today. He is strong & stubborn so I expect him to do ok. Prayers for you!