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have been seeing my regular Dr for 30 years but he knows nothing about Amy. He is trying to get some knowledge about it .I know more than he does about this disease.You definitely need a doctor that specializes in this disease. You live in Raynham .There are good hospitals in Boston for this.--Joe
Thanks for the reply. His current Dr. Pick up on the Amyloidsis right away. Does he need a Dr. That specializes in this disease? We are currently waiting for Vyndamax to sent. He likes his Doctor. Going to start cardio rehab.
Thank you for sharing about your husband's diagnosis. It sounds like you both have been through a lot with his heart conditions, especially with the pacemaker, valve replacement, and now this new diagnosis of Wild Type Amyloidosis. It’s definitely overwhelming, but it’s great that you’re seeking more information and support. Have you checked out this article yet that does a great overview of Wild Type Amyloidosis ? https://www.myamyloidosisteam.com/resources/wil.... Also going to tag @MyAmyloidosisTeam users... and @A MyAmyloidosisTeam Member who may be able to support you with these question.
It’s wonderful that you’re by his side during this journey, and the community is here for you both as you navigate this. 💙
Are these issues also concerning with this new diagnosis
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