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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 27, 2025
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MyAmyloidosisTeam

Amyloidosis is not directly caused by dietary fats or bacteria. The condition occurs when abnormal proteins called amyloids are produced by cells in your body and build up in organs and tissues. These proteins fold incorrectly, creating clusters called amyloid fibrils that the body has difficulty breaking down. While diet Show Full Answer

Amyloidosis is not directly caused by dietary fats or bacteria. The condition occurs when abnormal proteins called amyloids are produced by cells in your body and build up in organs and tissues. These proteins fold incorrectly, creating clusters called amyloid fibrils that the body has difficulty breaking down. While diet doesn't cause amyloidosis, choosing healthy fats can support overall health, especially heart health. Monounsaturated and polyunsaturated fats found in foods like nuts, avocados, flax seeds, fish, and certain oils (olive, corn, sunflower, safflower, canola) are beneficial. It's advisable to limit saturated and trans fats from fatty meats, dairy products, and processed foods. Remember that the proteins causing amyloidosis come from within your body - they are not related to the proteins or fats you eat. However, if you have kidney complications from amyloidosis, your doctor may recommend specific dietary changes to help manage your condition.

February 27, 2025
A MyAmyloidosisTeam Member

The simple answer is NO. What you eat has nothing to do with developing any type of amyloidosis. However, what you eat can impact how you do once diagnosed with amyloidosis, especially if you have heart or kidney involvement. A low sodium diet is needed to help reduce fluid retention that can negatively impact someone with congestive heart failure or kidney failure. Daily fluid intake may also need to be reduced in certain patients with cardiac failure. Your doctor should inform you when this is necessary. Fluid is the enemy for many amyloid patients with heart involvement. My husband is on daily fluid restrictions and it does not matter if it is water or the fluid found in fruits such as grapes, oranges, etc. One grape counts as one fluid ounce. He is limited to 55 ozs per day of fluid.

If you are in kidney failure, the daily intake of protein may need to be limited. A nephrologist can tell you more about that. Dietary protein causes the kidneys to work harder and you don't want to do that to organs that are already compromised.

March 2, 2025
A MyAmyloidosisTeam Member

In my opinion I think certain fatty acids from milk proteins and also lactose can feed bacteria in the body I also question what gluten does to our bacteria, are they creating biofilms, is there a connection with biofilms and amyloidosis? When I ingest these things I feel my body react. Are these things causing the cells to produce Amyloids ?

February 28, 2025
A MyAmyloidosisTeam Member

What’s your evidence for that belief?

February 28, 2025

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