Answer Summary

Members reflected on whether amyloidosis should be labeled terminal, with many preferring to call it chronic and emphasizing that survival can... Read more

Members reflected on whether amyloidosis should be labeled terminal, with many preferring to call it chronic and emphasizing that survival can extend well beyond initial expectations, especially with newer treatments like Vyndamax and emerging therapies that could lead to a cure. Several members shared hopeful personal stories, including improved heart function through treatment, survival timelines stretching 15 to 20 years, and the critical role of early detection and stem cell transplants in managing the disease effectively. A recurring theme was the power of mindset, attitude, and the will to live, with many encouraging each other to stay positive, advocate for their health, and focus on living fully despite the challenges.