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I am suffer extreme sharp burning pain in my feet and toes, I have AL type, in lungs and heart. Now feet so painful I can't walk!! Who can

A MyAmyloidosisTeam Member asked a question 💭

Who can help? What medicine will take pain away. I'm in tears it hurts so bad bHELP

August 19, 2025
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A MyAmyloidosisTeam Member

Shirley this is what I do with my neuropathy which I have had for 17 years now it sounds like a long time I wear and you see him online neuropathy socks they're white with blacky-strike bands in them. I wear a women's size 7.5 wide and use xl sod. Also if you have somebody who can gently massage your feet starting with the toes and I mean very gentle massaging it'll get the blood flow going back for me I use a roller it's hard to describe but you might find the back massage roller and I use that on my feet. I first started out with a tennis ball and sometimes I still use it but I've got to find it again one I put a hole in and froze it and that helped calm down the heat. Hope this helps

August 19, 2025
A MyAmyloidosisTeam Member

I would consider going to the ER. ❤️

August 20, 2025
A MyAmyloidosisTeam Member

I had appointment yesterday with primary, after waiting 6 wks they canceled!! My insurance rep got involved and told me should get back to me in 72 hours!! I feel so hopeless This is the worse pain ever!! Even after 2 major back surgeries and 2 broken ankles. Has anyone experienced this kind of pain???? I am praying for help.

August 19, 2025
MyAmyloidosisTeam

I'm so sorry you're experiencing such severe foot pain. This sounds incredibly distressing. The burning and sharp pain you're experiencing is likely due to amyloid neuropathy, where amyloid proteins affect your nerve function. This type of nerve pain is common in amyloidosis, especially when it affects small fiber nerves Show Full Answer

I'm so sorry you're experiencing such severe foot pain. This sounds incredibly distressing. The burning and sharp pain you're experiencing is likely due to amyloid neuropathy, where amyloid proteins affect your nerve function. This type of nerve pain is common in amyloidosis, especially when it affects small fiber nerves, and can indeed be extremely intense, particularly at night.

The first step is to contact your healthcare provider immediately. They need to know about this severe symptom development, as it may indicate progression that requires attention. While waiting to see your doctor, here are some symptoms you should document to help them understand your condition better:
• When the pain is most intense
• If there's any swelling along with the pain
• If you're experiencing any numbness or tingling sensations
• How the pain affects your ability to walk or sleep
• What makes the pain better or worse

Your healthcare team can prescribe appropriate medications for nerve pain management and evaluate if any adjustments are needed to your overall treatment plan.

August 19, 2025

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