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Now about 9 mos ago diagnosed by lung biopsy showed androids. Then, affected Heart, very ugly skin discoloration. Now my feet and toes severe sharp pains, can barely walk. Pain puts me in tears!!! Waiting for neurologist to call me ,been trying to get Vyndamax to slow process down. I believe my type is fast spreading. Right now I'm asking has anyone experienced this terrible pain in their feet?? How did you treat it?? Also 1 toe is deep purple 💜

August 20, 2025
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A MyAmyloidosisTeam Member

Yes! Lots of pain in my right foot… but also neuropathy in both feet. I’m going to bring it up to my Doctor next time I go in. Seems more than arthritis to me! I get tired of them saying…..you’re getting older ect….

August 20, 2025
MyAmyloidosisTeam

Foot and toe pain is a common symptom of amyloidosis, particularly when it affects the nerves (amyloid neuropathy). The pain can range from sharp and stabbing to dull and aching, and is often worse at night. This happens because amyloid proteins get deposited on or near the nerves, affecting how they function. The purple Show Full Answer

Foot and toe pain is a common symptom of amyloidosis, particularly when it affects the nerves (amyloid neuropathy). The pain can range from sharp and stabbing to dull and aching, and is often worse at night. This happens because amyloid proteins get deposited on or near the nerves, affecting how they function. The purple toe you're experiencing could be related to circulation issues that can occur with amyloidosis. Several foot-related symptoms can occur with amyloidosis:
• Burning or tingling sensations
• Sharp nerve pain
• Increased sensitivity to touch
• Swelling in feet and ankles
• Numbness
• Weakness that affects walking

It's important that you're already taking steps to see a neurologist, as they can help develop a treatment plan specifically for your nerve pain. The severe pain you're experiencing should be evaluated promptly, especially with the color changes in your toe.

August 20, 2025

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