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I am just now starting my 11th year with wild type amyloidosis , anyone else out there with that duration?

A MyAmyloidosisTeam Member asked a question 💭
Matthews, NC
October 15, 2025
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Reactions
A MyAmyloidosisTeam Member

I agree, Walter I have had stenosis, back pain for years also carpal tunnel. I believe I had had this for a long time until I complained about ll my issues then they did blood work and a neuclar test nd discovered I am stage 2 of wild type AMYLOIDOSIS or now they call it
W ATTR CM it is in my heart and my nervous system. Go figure.
Hope you are doing well. FLO

October 19, 2025
A MyAmyloidosisTeam Member

Likely we all had this disease long before it was diagnosed. Had all the symptoms years before any Doctor looked for it.

October 18, 2025
A MyAmyloidosisTeam Member

Jim that’s fantastic I only wish I do as well . I’m in my 3rd year since diagnosis . You have to tell us your secrets. We all wish you another 11 years of.health with this disease being pushed away.😄👍🙏

October 16, 2025
MyAmyloidosisTeam

That's wonderful that you've reached this milestone with wild-type amyloidosis! Thanks to advancing treatments, people with wild-type amyloidosis are living longer, healthier lives. Recent studies show encouraging survival rates, with over half of patients taking newer medications like tafamidis surviving past 5.5 years.

Show Full Answer

That's wonderful that you've reached this milestone with wild-type amyloidosis! Thanks to advancing treatments, people with wild-type amyloidosis are living longer, healthier lives. Recent studies show encouraging survival rates, with over half of patients taking newer medications like tafamidis surviving past 5.5 years.

Wild-type amyloidosis typically progresses more slowly than other forms of amyloidosis, which often leads to better outcomes for many people living with the condition. Several factors can influence long-term outlook, including:
• Age at diagnosis
• Heart-related biomarkers
• Ability to maintain daily activities
• Access to newer treatments

Your 11-year journey is a testament to the possibility of living well with this condition for many years, especially given the slower progression rate of wild-type amyloidosis.

October 15, 2025
A MyAmyloidosisTeam Member

Two raspberry donuts to you Jim. Congrats.

November 11, 2025

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