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No treatment should be started u til your doctors determine exactly which type of amyloid you have. Carpal tunnel can be found in patients with different types of amyloidosis such as ATTR or AL. Since treatments are vastly different for these two types of amyloid, it is imperative to know for sure, which type you have. It looks like you are close to Cleveland Clinic. They have an excellent amyloid program there headed up by hematologist Dr. Jason Valent and Cardiologist Dr. Mazen Hanna. They have the experience to give you a correct diagnosis and get you started on the right treatment. I highly recommend going there if your insurance allows.
What steps should you take after a positive amyloidosis diagnosis from carpal tunnel surgery?
First, it's important to know that getting a positive result from your carpal tunnel tissue sample is actually a valuable starting point. A MyAmyloidosisTeam member shared, "My carpal tunnel biopsy came back positive for Show Full Answer
Consider yourself 'lucky'. I hope you find knowlegable doctors. Be brave. Treatment can be tough. You will feel worse before you feel better, but you will feel better. The blessing of Amyloidosis is the focus it brings to your life and making the rest of it important.
I would say see a hematologist
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