My husband has improved on Tafamidis .
June 1
It's great that you're being proactive about your health, especially with your mom's history as a guide. Since ATTR-PN is hereditary, having a family member with the condition is a significant factor in diagnosis.
Many MyAmyloidosisTeam members have shared their experiences with treatment. One member asked, "Finally Show Full Answer
It's great that you're being proactive about your health, especially with your mom's history as a guide. Since ATTR-PN is hereditary, having a family member with the condition is a significant factor in diagnosis.
Many MyAmyloidosisTeam members have shared their experiences with treatment. One member asked, "Finally received approval of my treatment through Healthwell Foundation. How long does it take to improve polyneuropathy?" — showing that symptom improvement is very much on people's minds once treatment begins. Current FDA-approved medications for ATTR-PN work as gene silencers, meaning they block the instructions for making the abnormal TTR proteins. These include:
- Eplontersen (Wainua)
- Patisiran (Onpattro)
- Vutrisiran (Amvuttra)
These treatments aim to slow disease progression rather than reverse damage, so starting treatment early is really important. Alongside medication, supportive therapies can also help manage symptoms:
- Physical therapy to improve strength and reduce pain
- Occupational therapy to make daily tasks easier
- Pain management options like prescription medications or complementary therapies such as acupuncture
The earlier treatment begins, the better the chances of preventing further nerve and organ damage. Definitely discuss all available options with your specialist once your diagnosis is confirmed!
June 1
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