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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 6
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A MyAmyloidosisTeam Member

There really is no such thing as 100% of anything except death & taxes. As far as your question… I always believe that you need to question everything. More information isn’t a bad thing. And make sure to always read up to date material. Even some things written 2 years ago could be outdated!

July 11 (edited)
MyAmyloidosisTeam

That claim — that 100% of COVID-vaccinated people develop amyloid micro clots — is not supported by current medical evidence. It's worth being cautious about health claims that use absolute numbers like "100%," as these are rarely accurate in medicine.

Leading health organizations, including the American College of Show Full Answer

That claim — that 100% of COVID-vaccinated people develop amyloid micro clots — is not supported by current medical evidence. It's worth being cautious about health claims that use absolute numbers like "100%," as these are rarely accurate in medicine.

Leading health organizations, including the American College of Cardiology and the American Society of Hematology, have reviewed the evidence and concluded that COVID-19 vaccines are safe for people with amyloidosis — including those with cardiac involvement. What is well understood about amyloidosis is that it develops through specific, well-documented pathways:

- AL amyloidosis is caused by abnormal plasma cells producing misfolded light chain proteins
- ATTR amyloidosis is linked to a misfolded transthyretin protein, either inherited or age-related
- AA amyloidosis develops from prolonged inflammation due to underlying conditions

None of these established pathways are linked to COVID-19 vaccination. It's always a good idea to discuss any concerns about vaccines or treatments directly with your amyloidosis care team, who can give guidance tailored to your specific situation.

July 6

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