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They found a small amount of protein in my heart. They keep checking me for blood cancer. How long would you expect me to live?

September 7
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Life Expectancy With Amyloidosis: Prognosis for Different Types Read Article...
A MyAmyloidosisTeam Member

Adding to Jeannette's comment, my neighbor had AFIB and the cardiologist did a relatively simple procedure to resolve it. Something like nulling a nerve or two that contributed to it.
As for 'how long to live', if treated properly, this should not impact your longevity. (In my opinion).,
And keep a positive attitude--immensely important.
vern

September 7
A MyAmyloidosisTeam Member

Only your doctor would be able to answer that. There are so many variables.

September 7
MyAmyloidosisTeam

That sounds like an incredibly exhausting and stressful journey — dealing with persistent A-fib while going through so many treatments takes real strength.

It's important to know that no one can give a precise answer to how long someone will live, because every person's situation is unique. What can be shared is some Show Full Answer

That sounds like an incredibly exhausting and stressful journey — dealing with persistent A-fib while going through so many treatments takes real strength.

It's important to know that no one can give a precise answer to how long someone will live, because every person's situation is unique. What can be shared is some general context that might help frame things.

The presence of amyloid protein in the heart, combined with persistent A-fib, does indicate cardiac involvement, which doctors take seriously. However, outcomes vary widely depending on several factors:

- How much amyloid has deposited in the heart
- The specific type of amyloidosis (AL, ATTR, etc.)
- How early it was caught
- Which treatments are available and how well they work for you
- Overall health and other factors The good news is that treatments have improved significantly in recent years. Doctors now have targeted therapies that can slow new amyloid deposits, which has been described as a real game changer. Early detection and effective treatment can make a meaningful difference in outcomes.

The most important step right now is having an open, honest conversation with your care team about your specific type, stage, and treatment options. They can give guidance tailored to your unique situation in a way that general information simply cannot.

September 7

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Villa Hills, KY