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Age 89, Congestive heart failure, Osteoarthritis, and Glaucoma.
On Vyndamax 6 years
That’s ridiculous!
https://www.drugs.com/search.php?searchterm=Vyn...
I found the above. As far as supplements you could google ex: tumeric interactions with vyndamax. Do each supplement separately.
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Hi Rob, Thx for your response. I have Congestive Heart failure (Diastolic muscles) complicated by Amyloidosis which results in Edema. I wear compression stockings daily and take Bumetanide ( water… read more
I had a stent put in my left eye 3 years ago and now have about 10% vision. Right eye has about 80% vision. My understanding is the Glaucoma attacks the optic nerve and there is no cure available. I… read more
I am suffering from primary Amyloidisis affected on kideny filtration so creatine increased to @8
Same here my friend. 3 years too.
😍😃
Thanks Katy .I was unlucky I got Covid a couple of weeks after my Al Amyloidosis diagnosis and that put me on Dyalis and Daratumab at the same time.Thanks for your prayers.Best Regards Eugene.
What treatment options are being offered to you/are you doing? The organ affected is my kidneys.
Thankfully, my wife’s insurance has covered almost everything, they have done to me except the deductible on prescriptions. If we didn’t have the insurance, we would have lost our home, cars, boat and… read more
calf and hamstring muscles severe pain when standing or trying to walk
thanks for your comments Judi how are you doin? What kind of amyloidosis do you have do you take Vydamax? Do you have any skin issues from amyloidosis.Is the medicine called Requip?RX did you get it… read more
So far I’ve had no issues with Vyndamax it’s some of the other medications I’ve taken that had given me bad side affects.
My husband who was diagnosed about a year ago, but who has had symptoms of CATTR for +12years has severe balance issues. Originally they were blamed on vestibular neuritis, but seem to worsen ever more frequently with "bouts" of imbalance and falls. Sometimes there is LOC, other times he is just soooo tired that he falls down. Drs seem to just shake their heads and seem to imply it is a separate issue
Has anyone else ever had inner ear nerve damage attributed to the amyloidosis?
I had a stroke in Cerebellum that I thought was cause of balance issues ( don’t know when), but I think it may be related. Had gotten worse lately. I have CM ATTR so it may have triggered the stroke.
