Was Age Of Onset Pretty Consistent In Hattr (familial) Type ? | MyAmyloidosisTeam

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Was Age Of Onset Pretty Consistent In Hattr (familial) Type ?
A MyAmyloidosisTeam Member asked a question 💭
posted February 19
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A MyAmyloidosisTeam Member

I have 3 siblings and they all have hTTR . My brother had a heart transplant, My other brothers are on Vyndemax. I am on Onpattro. This disease is not a good one. Make sure you have a doctor who can help you💜🩷💜🩷

posted March 16
A MyAmyloidosisTeam Member

I think when my symptoms began I had cardiomyoathy ischemic probably around 60. Now 78 almost 79. Had pacemaker and defib implanted. Have CFH. Got vyndamax Friday 3/7/24.

posted March 8
A MyAmyloidosisTeam Member

All my siblings and I were diagnosed with hTTR amyloid in our 60s. But both my brother and I were misdiagnosed with high blood pressure and Afib for about 10 years.

posted March 4
A MyAmyloidosisTeam Member

Thank you,and yours as well.

posted February 22
A MyAmyloidosisTeam Member

Wish you and your family well Roxanna

posted February 22

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