I have 3 siblings and they all have hTTR . My brother had a heart transplant, My other brothers are on Vyndemax. I am on Onpattro. This disease is not a good one. Make sure you have a doctor who can help you💜🩷💜🩷
I think when my symptoms began I had cardiomyoathy ischemic probably around 60. Now 78 almost 79. Had pacemaker and defib implanted. Have CFH. Got vyndamax Friday 3/7/24.
All my siblings and I were diagnosed with hTTR amyloid in our 60s. But both my brother and I were misdiagnosed with high blood pressure and Afib for about 10 years.
Thank you,and yours as well.
Wish you and your family well Roxanna