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I take diflusinal. ben on it for almost 2 years and its still not in my heart as of my last biomarkers last week.i have wild type

A MyAmyloidosisTeam Member asked a question 💭
Detroit, MI
July 10, 2025
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MyAmyloidosisTeam

That's wonderful news that your biomarkers show no cardiac involvement! While diflunisal isn't officially FDA-approved for amyloidosis, doctors often prescribe it "off-label" because it helps prevent amyloid formation. It's encouraging that you're responding well to the treatment. Wild-type amyloidosis typically develops Show Full Answer

That's wonderful news that your biomarkers show no cardiac involvement! While diflunisal isn't officially FDA-approved for amyloidosis, doctors often prescribe it "off-label" because it helps prevent amyloid formation. It's encouraging that you're responding well to the treatment. Wild-type amyloidosis typically develops slowly over time, which can lead to a more favorable prognosis compared to other types. With proper treatment and monitoring, many people with wild-type amyloidosis are living longer, healthier lives. Continue working closely with your healthcare team and maintaining regular biomarker checks to monitor your condition.

July 10, 2025
A MyAmyloidosisTeam Member

That's great. Glad you are doing ok. I think you're the only other person with Diflunisal experience. My Cardiologist prescribed Diflunisal and a Green tea extract ECGC in January.
Hope it's working, I will see him again in January.

July 10, 2025

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are a lot of people using diflunisal for wt attractive

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