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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 10, 2025
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MyAmyloidosisTeam

That's wonderful news that your biomarkers show no cardiac involvement! While diflunisal isn't officially FDA-approved for amyloidosis, doctors often prescribe it "off-label" because it helps prevent amyloid formation. It's encouraging that you're responding well to the treatment. Wild-type amyloidosis typically develops Show Full Answer

That's wonderful news that your biomarkers show no cardiac involvement! While diflunisal isn't officially FDA-approved for amyloidosis, doctors often prescribe it "off-label" because it helps prevent amyloid formation. It's encouraging that you're responding well to the treatment. Wild-type amyloidosis typically develops slowly over time, which can lead to a more favorable prognosis compared to other types. With proper treatment and monitoring, many people with wild-type amyloidosis are living longer, healthier lives. Continue working closely with your healthcare team and maintaining regular biomarker checks to monitor your condition.

July 10, 2025
A MyAmyloidosisTeam Member

That's great. Glad you are doing ok. I think you're the only other person with Diflunisal experience. My Cardiologist prescribed Diflunisal and a Green tea extract ECGC in January.
Hope it's working, I will see him again in January.

July 10, 2025

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