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My husband was diagnosed with AL Amyloidosis in November 2023. I started seeing changes in him going back to about 2017-18
He’s always had yearly physicals that were normal, so I just thought maybe he’s getting older. Looking back I’m wondering if it’s was the beginning of what is now an advanced stage of AL Amyloidosis. Any thoughts are greatly appreciated!
I believe we carry the disease lo g before it is diagnosed. The way mist diseases go, they lie recessive for years and by the time they show up they begin to start giving us trouble. I was having… read more
Sad, sorry to hear that. What meds/ treatment are you on. I will be starting daratumumab and Revlimid very soon.
Just diagnosed at 57 w/ AL. In process of getting two opinions.
Hate to hear about your back problems Vern. I. didn't know amyloidosis could do that. I wish you a pain free future.
Yes Mary.
Dear Jim233. If I knew I’d be gone tomorrow, I’d be out there spending every tiny bit of money I have. (Ha ha). Seriously, God onlly loaned us to this earth and he can recall us at any time. My… read more
I had tremors but they are so much better as is my pain and neuropathy. I have been doing acupuncture, neuromed electrical therapy, and cold laser therapy. I have had 68 treatments so far. I have… read more
Suffer from wild type attr
It's a pleasure hearing from u & appriciate & hug u back
I was diagnosed at 83 with wild type and have been taking Vyndamax since December 2023 and was diagnosed with A-fib a month ago. Wonder if the wild "child" caused the Afib?? Now on Blood thinner for… read more
Always verbal.Know he is tired and it's hard having to help with house hold when that was never part of ťhe deal before.
Thanks Linda8
The socks are all to tight for me too. I have tried several brands, even the zip up side. I have lost so much strength in my hands I just can't get them on I took gabapentin for years and just… read more
