Quick Links
About MyAmyloidosisTeam
Powered By
Age 89, Congestive heart failure, Osteoarthritis, and Glaucoma.
On Vyndamax 6 years
That’s ridiculous!
https://www.drugs.com/search.php?searchterm=Vyn...
I found the above. As far as supplements you could google ex: tumeric interactions with vyndamax. Do each supplement separately.
… read more
Hi Rob, Thx for your response. I have Congestive Heart failure (Diastolic muscles) complicated by Amyloidosis which results in Edema. I wear compression stockings daily and take Bumetanide ( water… read more
I had a stent put in my left eye 3 years ago and now have about 10% vision. Right eye has about 80% vision. My understanding is the Glaucoma attacks the optic nerve and there is no cure available. I… read more
See your neurologist. Get a Nerve & Muscle conduction test! My results were abnormal and attributable to Amyloidosis.
Same here my friend. 3 years too.
I think I have Al
Has anyone had this test to determne what the amyloids are doing? Jeffrey
I had these tests as part of my initial diagnosis. It was both interesting to actually see the twinkling of the fibrils around my heart and appalling just the same. This proved, along with cardiac… read more
So far I’ve had no issues with Vyndamax it’s some of the other medications I’ve taken that had given me bad side affects.
on vyndamax since 23 i have manageable symptoms neoropathy in arms and shoulders unsteady balance. tired often red eyes . dont kniow what stage i am in . often out of breath. but i am 89 and very bad at computer working hope everyone has a good day
I don’t know if the Mayo staging applies to wt. I’m in stage 2 of AL. My BNP enzyme is high but my troponin is normal.
I think the only way to really understand how much Tafamidis works is by comparing the heath thickness before and after, at least 1 year of therapy. Has anyone got this information?
Sheldon, is the Acoramidis also manufactured by the same company as Tafamidis and Patisiran?
