calf and hamstring muscles severe pain when standing or trying to walk
watch that your BP doesn't go too low if it does take hydrocortisone see Endocrinology amyloidosis specialist. Do your ankles swell feet etc do your retain fluid ? Do you take Lasix water pill. Whaya… read more
Thanks Tee for your reply much appreciated
PYP results – quote from ASNC Practice Points, cited in 2022
“While grade 2-3 or H/CL >1.5 uptake is strongly suggestive of TTR amyloidosis, any degree of 99mTc-PYP uptake can also be seen in… read more
I have minor damage to heart but lost unexplained strength in left leg.
Abstract
Background: Transthyretin amyloid (ATTR) cardiomyopathy is a progressive and fatal disease caused by misfolded transthyretin. Despite advances in slowing disease progression, there is no… read more
Thanks for adding the update Joel! Here is the latest press release that shows November 29 as the PDUFA action date. https://investor.bridgebio.com/news-releases/ne...
Let’s hope the administrator of this site pays attention. This is about the 3rd time I complained about old 2021 news posted with Dr Levine as author. There are too many more current treatments and… read more
I noted on ancestry.com my ancestors died from cardiomyopathy which was probably TTR. my mom passed at 93 with heart failure undiagnosed as TTR.