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Top 10 search results for "staging and progression of al amyloidosis" in Q&A. To see all results and access other features, sign up for free.

What Vitamins, Nutrients Or Other Medications Are Contraindicated When Taking Vyndamax
A MyAmyloidosisTeam Member asked a question 💭

Age 89, Congestive heart failure, Osteoarthritis, and Glaucoma.
On Vyndamax 6 years

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A MyAmyloidosisTeam Member

That’s ridiculous!

https://www.drugs.com/search.php?searchterm=Vyn...

I found the above. As far as supplements you could google ex: tumeric interactions with vyndamax. Do each supplement separately.

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What Foods Or Nutrients Are Contraindicated While Taking Vyndamax. Obviously Sugar And Salt Head The List. Al Sobel
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

Hi Rob, Thx for your response. I have Congestive Heart failure (Diastolic muscles) complicated by Amyloidosis which results in Edema. I wear compression stockings daily and take Bumetanide ( water… read more

Does WILD "A" Affect Glaucoma?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

I had a stent put in my left eye 3 years ago and now have about 10% vision. Right eye has about 80% vision. My understanding is the Glaucoma attacks the optic nerve and there is no cure available. I… read more

Hi All Feeling Good But Feet Go Numb And Harder To Walk. Any Suggestions To
A MyAmyloidosisTeam Member asked a question 💭
A MyAmyloidosisTeam Member

See your neurologist. Get a Nerve & Muscle conduction test! My results were abnormal and attributable to Amyloidosis.

I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs
A MyAmyloidosisTeam Member asked a question 💭

calf and hamstring muscles severe pain when standing or trying to walk

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Foods To Avoid With Amyloidosis Read Article...
A MyAmyloidosisTeam Member

watch that your BP doesn't go too low if it does take hydrocortisone see Endocrinology amyloidosis specialist. Do your ankles swell feet etc do your retain fluid ? Do you take Lasix water pill. Whaya… read more

Is Anyone Taking Vyndamax61 For Attrcm? If So Are You Satisfied ? Richard 5
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

Same here my friend. 3 years too.

Wild Type Nuclear Test
A MyAmyloidosisTeam Member asked a question 💭

Has anyone had this test to determne what the amyloids are doing? Jeffrey

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A MyAmyloidosisTeam Member

I had these tests as part of my initial diagnosis. It was both interesting to actually see the twinkling of the fibrils around my heart and appalling just the same. This proved, along with cardiac… read more

Does Anyone With Wild Type Amyloidosis Have Significant Peripheral Neuropathy Like I Do?
A MyAmyloidosisTeam Member asked a question 💭
A MyAmyloidosisTeam Member

I think I have Al

What Has Been Your Experience With Vyndamax?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

So far I’ve had no issues with Vyndamax it’s some of the other medications I’ve taken that had given me bad side affects.

ATTRwt : Has Anyone Verified Hearth Thickness After Using Tafamidis By Echocardiogram Versus The Thickness Before The Therapy?
A MyAmyloidosisTeam Member asked a question 💭

I think the only way to really understand how much Tafamidis works is by comparing the heath thickness before and after, at least 1 year of therapy. Has anyone got this information?

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A MyAmyloidosisTeam Member

Sheldon, is the Acoramidis also manufactured by the same company as Tafamidis and Patisiran?