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Top 10 Search Results for "amyloidosis the path to diagnosis"

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Will Acoramidis Replace Tafamidis If Approved In The US? Will We Have A Choice?
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What's The New Medication For Amyloidosis, I'm Currently On Vyndamax. Any Information Appreciated, Thanks! Keep The Faith ☮️🙏
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Thanks Tee for your reply much appreciated

Can Amyloidosis Be Diagnosed Only By Heart Screening ? Or You Need Blood Tests To Be Sure ?
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PYP results – quote from ASNC Practice Points, cited in 2022
“While grade 2-3 or H/CL >1.5 uptake is strongly suggestive of TTR amyloidosis, any degree of 99mTc-PYP uptake can also be seen in… read more

Trial NI0006 On ATTRwt Drug To Remove Amloid Fibrlis From Heart. Will This Remove Amloid From Muscles, Nerves And Spine Also?
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I have minor damage to heart but lost unexplained strength in left leg.

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A MyAmyloidosisTeam Member

Abstract
Background: Transthyretin amyloid (ATTR) cardiomyopathy is a progressive and fatal disease caused by misfolded transthyretin. Despite advances in slowing disease progression, there is no… read more

Was Age Of Onset Pretty Consistent In Hattr (familial) Type ?
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I have 3 siblings and they all have hTTR . My brother had a heart transplant, My other brothers are on Vyndemax. I am on Onpattro. This disease is not a good one. Make sure you have a doctor who can… read more

Anyone Know Where Acoramidis May Be Approved And If They Work Better Than Tafamids?
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A MyAmyloidosisTeam Member

Thanks for adding the update Joel! Here is the latest press release that shows November 29 as the PDUFA action date. https://investor.bridgebio.com/news-releases/ne...

Why Are U Posted Articles With A Date Of 2021??
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Does Amyloidosis Cause Joint Pain? Read Article...
A MyAmyloidosisTeam Member

Let’s hope the administrator of this site pays attention. This is about the 3rd time I complained about old 2021 news posted with Dr Levine as author. There are too many more current treatments and… read more

Organ Specific Primary Amyloidosis Can You Explain This Condition?
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I am suffering from primary Amyloidisis affected on kideny filtration so creatine increased to @8

Hello….Those Of You With Hattr. Did It Tend To Run In Your Families? And Was The Age Of Onset Younger Than 75?
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I noted on ancestry.com my ancestors died from cardiomyopathy which was probably TTR. my mom passed at 93 with heart failure undiagnosed as TTR.

I Was Just Diagnosed With ATTRAmyloid At Age 72 And Just Started Vyndamax. Does Anyone Have Any Idea What The Life Expectancy Is?
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I was diagnosed at 83 with wild type and have been taking Vyndamax since December 2023 and was diagnosed with A-fib a month ago. Wonder if the wild "child" caused the Afib?? Now on Blood thinner for… read more