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Top 10 Search Results for "al amyloidosis and blood cancers understanding the connection"

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What Vitamins, Nutrients Or Other Medications Are Contraindicated When Taking Vyndamax
A MyAmyloidosisTeam Member asked a question 💭

Age 89, Congestive heart failure, Osteoarthritis, and Glaucoma.
On Vyndamax 6 years

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A MyAmyloidosisTeam Member

That’s ridiculous!

https://www.drugs.com/search.php?searchterm=Vyn...

I found the above. As far as supplements you could google ex: tumeric interactions with vyndamax. Do each supplement separately.

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What Foods Or Nutrients Are Contraindicated While Taking Vyndamax. Obviously Sugar And Salt Head The List. Al Sobel
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

Hi Rob, Thx for your response. I have Congestive Heart failure (Diastolic muscles) complicated by Amyloidosis which results in Edema. I wear compression stockings daily and take Bumetanide ( water… read more

Does WILD "A" Affect Glaucoma?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

I had a stent put in my left eye 3 years ago and now have about 10% vision. Right eye has about 80% vision. My understanding is the Glaucoma attacks the optic nerve and there is no cure available. I… read more

I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs
A MyAmyloidosisTeam Member asked a question 💭

calf and hamstring muscles severe pain when standing or trying to walk

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Foods To Avoid With Amyloidosis Read Article...
A MyAmyloidosisTeam Member

after JUDY AMYLOIDOSIS

My Husband Has Wild Type ATTR CM, I Would Love To Know What Amyloidosis Center Or Dr, You Have Seen. It’s So Hard To Find One!
A MyAmyloidosisTeam Member asked a question 💭
A MyAmyloidosisTeam Member

Not knowing where you live, I will just comment on how I established my team of doctors. Once my family doctor realized that I had a problem, he linked me to a lung doctor and a liver doctor. Lung… read more

When The Standard Chemo Treatments Aren't That Effective After 17 Treatments, What Is Another Option To Switch To?
A MyAmyloidosisTeam Member asked a question 💭

I am Millard Collins. I have AL Amyloidosis. At the first part of October 2022 I started taking the usual chemo treatments with Cyclophosphomide, Bortezomib, Daratumumab and Dexamethasone. Starting out my lamba light chains was 92 after 4 1/2 cycles (17 treatments) they only went down to 75 dropping down to 65 once then up to 85 then back down to 75. My SGGT spiked to 276. So we stopped the chemo treatments two weeks ago. I see my oncologist in two days to see what different route we are going… read more

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A MyAmyloidosisTeam Member

I am being treated with Daratumumab + Dexamethasone every 3 months. It is one of the gold standards for treatment for Amyloidosis. I tend to shy away from any unconventional treatment. If your friend… read more

Is The AL Amyloidosis The Cancer Disease.
A MyAmyloidosisTeam Member asked a question 💭
Treatment Options for AL Amyloidosis Read Article...
Will Acoramidis Replace Tafamidis If Approved In The US? Will We Have A Choice?
A MyAmyloidosisTeam Member asked a question 💭
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Is Anyone Taking Vyndamax61 For Attrcm? If So Are You Satisfied ? Richard 5
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

Same here my friend. 3 years too.

I've Been Subscribed Jardiance Along With My Vyndaquel. Is Anyone Else Using This Drug, And Have You Seen Results?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

I take Jardiance and Vyndamax. My cardiologist says it might help ejection fraction.